The scale of the need

This page sets out the evidence the project rests on: externally sourced figures, given as ranges rather than single numbers, with every caveat needed to read them properly. Any figure here can be traced to its origin.

Why there is no single number

Sudan has no reliable single count of people with special needs. Anyone offering one is either relying on an old census or generalising from a global average. This project therefore plans against a range, and names the three reference points behind it.

First, the 2008 Sudan census. It recorded disability prevalence of roughly 4.8% across the states that make up present-day Sudan, and a higher 6.8% in River Nile State. We treat this as a floor: the census did not use the Washington Group questions on functional difficulty, and did not adequately separate autism, intellectual disability, developmental delay and learning disorders.

Second, Sudan's humanitarian planning standard of 15%. Adopted by the 2025 Sudan Humanitarian Needs and Response Plan, drawn from global averages because wartime field assessments cannot measure prevalence accurately.

Third, the World Health Organization's estimate of 16%. Around 1.3 billion people — close to a sixth of the world — live with a significant disability. Need rises in communities affected by war, displacement, injury, malnutrition and disrupted healthcare.

The methodological result: planning runs across a range, from 4.8%–6.8% as a conservative historical floor, through 15% as a realistic planning scenario under current conditions, to 16% as a long-term global benchmark.

These percentages do not mean everyone needs permanent institutional care. Some need only early detection or an assistive device; some need intermittent rehabilitation; a smaller share needs intensive services or long-term residential support.

The scale, at three levels

Sudan, then the state, then the locality. The population baseline for River Nile State and Berber Locality is UNFPA / UN OCHA operational population data from July 2025 — an estimate adjusted for fertility, mortality, internal displacement and outflow caused by the war, not a new census. The Sudan-wide figure is updated to UNFPA’s more recent 2025 population data.

Disability estimates at three levels
LevelPopulationConservative historical estimateHumanitarian planning scenario
Sudan≈ 51,700,000≈ 2,481,600≈ 7,755,000
River Nile State2,582,799≈ 175,630≈ 387,420
Berber Locality389,936≈ 26,516≈ 58,490

The conservative estimate for Sudan applies 4.8%; for the state and locality it applies the higher historical rate recorded in River Nile State, 6.8%. The humanitarian planning scenario applies 15% at all three levels. In every case the calculation is the project statistical analysis applied to 2025 population data.

The headline range

2,481,600 – 7,755,000

People with special needs in Sudan — estimated range

Source: Project statistical analysis, applying 4.8% and 15% to Sudan's population (UNFPA, Sudan Population 2025)

175,630 – 387,420

People with special needs in River Nile State

Source: Project statistical analysis, applying 6.8% and 15%

26,516 – 58,490

People with special needs in Berber Locality

Planning estimates, not a register of identified individuals.

Source: Project statistical analysis, applying 6.8% and 15%

Berber Locality in detail

The locality the project will be built in, described in enough detail for a funder or a ministry to work from.

Berber Locality has a population of roughly 389,936 — 198,257 female and 191,679 male. Children under 18 make up close to half of it. That single fact is why early detection, developmental intervention, speech therapy, autism services and school inclusion are core components of this project rather than additions to it.

The figure 389,936 is the population of the locality including all its villages and areas, not of Berber town alone. No reliable recent data separates the two after the waves of displacement and demographic change. The project is therefore presented as a complex based in Berber town serving the locality, the state and neighbouring areas.

389,936

Population of Berber Locality

This is the population of the locality including all its villages and areas, not of Berber town alone. No reliable recent data separates the two.

Source: UNFPA / UN OCHA, 2025

48.7%

of Berber Locality is under 18

Source: Project statistical analysis, from 2025 population data

6.6%

of the locality is aged 60 or over

Source: Project statistical analysis, from 2025 population data

Four scenarios for Berber Locality

The same population, calculated against each of the four reference points. The distance between the lowest and highest figure is precisely why a field survey is needed.

Disability estimates for Berber Locality by reference point
Reference pointRateEstimated persons
National historical rate4.8%18,717
River Nile State historical rate6.8%26,516
Humanitarian planning standard15%58,490
Global average16%62,390

The three tiers recommended for the feasibility study

Conservative floor
Around 26,500 potential beneficiaries. A safe basis for setting the minimum capacity required.
Most likely scenario
40,000 – 58,500 potential beneficiaries. The closest to reality under current conditions.
Comprehensive long-term scenario
Around 62,000 potential beneficiaries. For planning expansion, not phase one.

From estimate to operational scale

Not everyone will register at opening. Uptake is gradual, and the design has to absorb growth. These are coverage projections, not a decided capacity.

1,326 – 2,924

active beneficiaries at 5% coverage of Berber Locality

A coverage projection, not a decided capacity.

Source: Uptake scenarios, project statistical analysis

2,652 – 5,849

active beneficiaries at 10% coverage of Berber Locality

A coverage projection, not a decided capacity.

Source: Uptake scenarios, project statistical analysis

The direct design consequence: phase one must be expandable. Building at a small, closed capacity that cannot absorb future growth is a mistake that is expensive to undo.

Why Berber

Berber ranks roughly third among the localities of River Nile State by population, but its position makes it a hub. This is what justifies a regional multi-service centre rather than a local clinic:

  • The population of Berber Locality itself
  • Villages and agricultural areas on both banks of the Nile
  • The southern part of Abu Hamad Locality
  • Parts of Atbara and Ed Damer
  • Referrals from Northern State
  • Displaced and returnee families needing physical, psychological and social rehabilitation

How the need is distributed across River Nile State

Disability estimates by locality, River Nile State
LocalityPopulationEstimate at 6.8%Estimate at 15%
Shendi595,41140,48889,312
Ed Damer552,84137,59382,926
Berber389,93626,51658,490
Al Matama361,82724,60454,274
Atbara306,59820,84945,990
Abu Hamad292,13719,86543,821
Al Buhaira84,0495,71512,607
Total2,582,799175,630387,420

Types of need

The distribution of disability types as recorded by the 2008 census. Read it to work out which specialisms are required, not to count people.

Distribution of recorded disability types
The same data as a table — Distribution of recorded disability types
Distribution of recorded disability typesShare of recorded cases
Difficulty seeing31.46%
Intellectual disability (census's own term)24.17%
Limited use of leg(s)18.14%
Difficulty hearing13.17%
Limited use of arm(s)5.71%
Blindness4.98%
Speech difficulty3.95%
Deafness3.39%
Loss of leg(s)3.31%
Loss of speech2.36%
Loss of arm(s)1.39%

Two caveats are essential here. First, these categories overlap — one person may have more than one disability, so these percentages must not be summed as discrete groups. Second, the census terminology is outdated and does not align with modern classification; we have kept it as the source recorded it rather than quietly rewriting it. What the distribution does establish clearly is that the complex has to be multidisciplinary.

Autism spectrum

No recent comprehensive Sudanese statistics separate autism spectrum disorder by state or locality. The World Health Organization estimates that around 1 in 127 people globally had ASD in 2021. Applying that rate, for preliminary planning only:

≈ 3,070

Estimated autism spectrum, Berber Locality

A planning indicator for the scale of screening and intervention needed — not a diagnostic count.

Source: WHO estimate (1 in 127) applied to the locality population

≈ 1,495

of them children under 18

Source: WHO estimate (1 in 127) applied to the locality population

≈ 20,337

Estimated autism spectrum, River Nile State

Source: WHO estimate (1 in 127)

These are not diagnostic counts. They indicate the scale of need for early screening, assessment, early intervention, family training and specialised education. Needs vary widely: some people need limited educational or communication support, others need intensive and sustained programmes.

The rural reality

The 2008 census recorded that the great majority of people with special needs live outside towns. This is not a statistical detail — it determines what the service has to look like.

66.7%

of people with special needs lived in rural areas

Source: Sudan Census 2008, via the UN Statistics Division

26.3%

in urban areas

Source: Sudan Census 2008, via the UN Statistics Division

7%

among nomadic communities

Source: Sudan Census 2008, via the UN Statistics Division

Which makes each of the following a structural component of the service design, not an enhancement:

  • Mobile clinics
  • Adapted transport
  • Home visits
  • Sub-referral centres
  • Telemedicine and tele-rehabilitation
  • Training programmes for families, teachers and rural health-centre staff

The difference between "some help exists" and a system

That some kind of help is available is one thing. An integrated system is another. It covers:

  • Medical and functional diagnosis
  • Physiotherapy and occupational therapy
  • Speech and language therapy
  • Audiology and hearing-aid fitting
  • Vision and low-vision services
  • Prosthetics and assistive devices
  • Autism and developmental-delay assessment
  • Special education and school inclusion
  • Vocational rehabilitation and employment
  • Psychosocial support for families
  • Independent or supported housing
  • Respite care to relieve families
  • Adapted transport and safe access

This gap is precisely what gives Al-Amlaq City its importance as an integrated project rather than a set of disconnected services.

What we do not yet know

What the baseline survey covers

The committed methodology has ten elements:

  • The Washington Group questions on difficulty seeing, hearing, walking, remembering, communicating and self-care
  • The UNICEF / Washington Group Child Functioning Module: mobility, vision, hearing, communication, learning, behaviour and emotions
  • Enumeration of diagnosed and undiagnosed cases
  • Recording age, sex, place of residence, disability type and severity
  • Recording which services are received and which are unavailable
  • Enumeration of out-of-school children
  • Enumeration of people needing assistive devices
  • Enumeration of displaced and low-income households
  • Mapping of existing centres, schools, associations and specialist staff
  • Establishing a secure electronic beneficiary registry, updated annually

The survey can begin with a representative sample and become a comprehensive registration exercise, working with the Ministry of Health, the Ministry of Social Welfare and Development, the localities, schools, health centres and organisations of people with special needs.

Sources

Every figure on this page comes from one of the following, or is calculated directly from it.

  • UNFPA / UN OCHASudan operational population data, July 2025 — the population baseline for River Nile State and Berber Locality on this page.
  • UNFPASudan Population 2025 (≈ 51.7 million) — the population baseline for the Sudan-wide need estimate on this page.
  • UN Statistics DivisionSudan Census 2008 — disability prevalence rates, the distribution of disability types, and the rural / urban / nomadic split.
  • World Health OrganizationGlobal disability prevalence (approximately 16%) and the 2021 autism spectrum estimate of 1 in 127.
  • AfrobarometerSudan 2022 survey — assessment of government performance in protecting vulnerable groups, and proximity of service centres.
  • Humanitarian Data Exchange2025 population data broken down by state and locality.
  • Sudan Humanitarian Needs and Response Plan 2025The 15% humanitarian planning standard.
  • UNICEF Multiple Indicator Cluster SurveysThe Child Functioning Module, adopted as the methodology for the proposed baseline survey.